Category Archives: Blogging

TALK ABOUT YOUR MEDICATIONS MONTH

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ARC_Talk_About_Meds_Banner_Paul

I have been asked recently to help spread awareness about taking medication and medication safety By the American recall center (click here and it will take you to their recent post about Xarelto). I of course obliged (i am very honoured). Well here goes:

Medication I take – My medication has varied over the years from tablets like fluoxetine and Risperidone (which are antidepressants and anti physcotics) to tablets that i am on now which are pregabalin and melatonin.  Pregabalin is usually used to treat epilepsy by controlling electrical activity in the brain, but they can also be used for extreme anxiety. This is what I take these tablets for. Melatonin on the other hand is used for sleeping. All plants animals and humans all produce melatonin (which is a hormone). In humans, we have a small gland inside the brain that creates and releases melatonin. This is what controlls our wake and sleep patterns. The tablet melatonin basically boosts the amount of melatonin created thus helping you fall asleep.

What side effects have I experienced – With Fluoxetine I developed a rash so I can’t have any medication that is similar to that now. With Risperidone I had a bit of a heart problem  {long QT}. Infact the doctor was so worried about this that he insisted i had to have a ECG every month to keep a eye on my heart. My most recent side effect is balance issues. Each time my phsycologists ups the dosage of pregabalin, it takes about 3 or 4 days to get my balance in order. I keep walking into my mum for example when i go for a walk or i would fall going up the stairs because i have not judged the step correctly.

How i remember when to take my medication – my Mum. Basically if I forget to take my medication at the right time my mum reminds me. This as i have experienced is a great way to take your medication at the right time. If you are not very good at remembering to take your medication, make sure you either have someone there who can remind you or you can buy a sort of pill box. It is labeled with names of each day of the week. So what you can do is put your tablets into their correct compartment at the begining of the week,then you can see exactly what you have had during the day and what you have left. This will ensure you dont go over your prescribed amount also.

Advice for you.

1. Always make sure you find out the side effects of you medication. You will then know what to look out for.

2. Make extra sure you dont go over your prescribed limit. Double check your dosage before you take any medication. Its better to be safe than sorry.

3. Dont be nervous about speaking to your doctor. He is there to help.

4. Dont drink alcohol on any medication if it tells you not to on the information leaflet.

5. Keep all your medication away from children.

6. Always read the information leaflet that usually comes with it.

 

PLEASE SHARE THIS IF IT HELPED YOU, OR YOU THINK IT WILL HELP SOMEONE ELSE. THANKYOU.

 

 

 

I RAN 5 MILE

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                                        WOOOO HOOOO

Just after i wrote my last post i went on my treadmill. Me and my brother Tom was doing a challenge. We basically had to try and do 4 miles between us. Tom did 1 mile because Tim told him to come off and so i had to try and do 3. I think it was in my mind to conquer 3 mile because my body didnt feel as tired and i could carry on for longer. Your mind can be so powerfull sometimes. Its unbelievable. Anyway i got to 3 and felt fine. Bare in mind my past record was 2 miles. I carried on and thought i would go for Adams record which is 4 miles. I was a little tired but cracked on with it. I then went for my taxi drivers record which is 4.2 miles. me and Javid (taxi driver) are always talking about fitness because we both love it so much. Also he goes to the gym on the running machine 5 times a week if he can. So i was super pleased to break his record. Then i thought why stop there, lets go for the 5. i did it in around 57 minutes. I was getting very tired around the 4.7 mark. But for once my mind helped me achieve something i thought was impossible for me. Thanks for reading.

P.s tommorow i will post a good picture i took on my new phone.

100th POST. MY BIG ACHIEVEMENT.

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THIS IS WHAT IT LOOKED LIKE WHERE WE WAS SAT AT !!!!!!!!!!!!!!!!!!!!!

My big achievement is………….  I went to a football match. Leeds united football match to be precise. My stepdad Tim won a facebook competition to go to the match. He won 2 tickets for seats right at the top tier. I wasnt going untill the morning of the match. I wondered about going the day before so i thought that when i get up i would decide then. And i just went for it even though i was nervous. Not as nervous as i would have been like 2 years ago but still nervous because it was something new to me (well i havent been to a match for about 10 years, so it was kind of new). When we got close to the stadium there was hundreds of people walking towards it. The realisation of what i was doing then sunk in. Fortunately i could controll my emotions. If i didnt i would have been too nervous and then i would have to sit in the car for two hours whilst i wait for Tim to watch the match and then come back to the car. It would have been to far to drive me back because it was about 40 miles away. When we parked up and started walking to the stadiums entrances my emotions suddenly burst out of me. I didnt tell Tim but i had uncontrollable shivering. The ony thing that stopped my jaws from chattering was having a chewing gum. I couldnt believe this (for me) herculean task i was doing. There was now thousands of people wondering into the entrances. You have to remember that humans for me are very unpredictable, and i was going into a sort of massive cage full of high adrenaline, unpredictable cretures. We eventually found our seat and i was very surprised how close you are to the other people. You are literally shoulder too shoulder with random strangers ( a autistics worst nightmare ). I gritted my teeth and got on with it. When the players came on to the pitch there was a massive roar of cheers and shouting. Later on it flashed up on the screen that there was around about 24 thouand people there. So you can imagine the sound of all them people. I put my hood up to dampen the sound abit. It wasnt a lot though. Anyway the match passed by unexpectedly quick. The one thing i noticed though i that i couldnt concentrate on the game properly because of the noise. i think it was sensory overload. But the thing was though, i did it. On the way home i was very happy with myself and so was my mum and stepdad. Unfortunately though Leeds drew 1-1 against Sheffied Wednesday. What do you thinks about my big achievement ? Thanks for reading.

P.S we are going on holiday for the first time in about 4 years next week to wales. So i will tell you how it went after i get back.

JESUS OR AN ASSASSIN ???

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So this is the photo what i said i would upload on Monday. Firstly, this is me. You have never seen me before so atleast now you can put a face to my writings. Secondly, this photo was a result of me and my mum messing about in the kitchen. I put this teatowel on my head and i tried to look holy. My nan thinks i look like jesus and some of my family think i look like a assassin off assassins creed (a video game). What do you think? Thanks for reading.

P.s i was a bit nervous at showing my face

INJURY AND ROUTINES

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Last Friday whilst at college i got an injury. I strained my groin. It was when i was having a bit of a kick around either before i went into college or before i went home. I cant remember. Anyway last weekend i didn’t do as much exercise or anything like that, because i wanted it to get better for the week ahead ( i did one walk). And it did. Or i thought it did because yesterday, exactly one week from that injury Ive done it again. I don’t get it though because i stretched before i had a kick about and i have been playing football all week at college. For those of you who are new here or have just forgot, when i go to college i play football for 10 minutes before i go in. This is so i can settle down before i have to go inside and do something. For some reason if i don’t play football for 10 minutes i don’t cope as well inside college. Its probably routine. But here is where the problem lies now. This injury is worse than last weeks one so i need to give it about a weeks rest at least. So what will i do when i go to college and i cant play football. I would probably just have to go for a walk around the building once or twice. I have got a tiny bit better at my routine changing now though. Before i didnt like one thing changing in my routine. And if it did it would mess me up. It just shows how intrinsic and important if for autistic people. We feel safer when our routine is in place. There are no surprises or variables in our day. Its like blood or oxygen for some people. If you don’t have it, you don’t work as efficiently, simple as that. Now as i have said, i am better at that now. I can change some things in my routine. So i will use this benefit to not get as stressed or worried about things changing. Like going for a walk instead of playing football. I will still though really look forward to getting back to playing football though. Just be wary of peoples routines though because some people need to stick to theirs, just as you may need to stick to what time you arrive at work for example. Thanks for reading.

P.s i might put a picture of me on this in a few days. Its me with a tea towel on my head. i know, weird right? But My mum and nan think i either look like Jesus on it or a character from assassins creed. let me know if you want me to put it on or not so you can tell me what you think.

MANCHESTER CITY STADIUM

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Today i have been to the Manchester City Football teams stadium (or Etihad Stadium). I went because i thought i was doing some work experience there. I went with one of my support workers called Steve, who is a massive Manchester city fan, and a few other people. When we got there we had to wait in the reception area for someone called Paul (same name as me). When i asked why this was, Steve said it was because Paul had to show us around first before any work was undertaken. It was basically an induction, like the one at a gym. When i say work, i mean small menial tasks like giving the seats in the stadium a quick wash over. When Paul arrived he began to show us around the place. He told us that it was a work place so no one could mess about. They went into this room where there was a TV showing sky-sports news. There was a few people sitting down and also having a drink. They was probably on their break. We all sat around a table because i think one of the people from my college had to sign a few papers. Steve knew i didn’t like sitting around the table with all these people, so he asked me should we wait outside the room until they had finished. I obviously said yes. As we was waiting outside the room and chatting, a person went into the room where we had been in a few minutes before. After a short while he came out and was pushing a large trolley. And on it was a large dark brown box. Steve knowing a lot about the stadium told me that inside the box that was just wheeled out was the premier league trophy. I was glad to be this close although i didnt see it. Shortly after, the rest of the people came out of the room. We walked out of some doors and we was in the tunnels. The tunnels where the footballers walk out onto the pitch to thousands of cheering fans. It was fantastic. We saw where the players was interviewed after the match and continued up the tunnels onto the edge of the pitch. It was a big stadium but it was smaller than i expected. I asked Steve (when we was going out of the pitch) how many seats there was in it, and he said 48,000. At the edge of the pitch i saw just how pristine the grass was. Absolutely immaculate piece of ground. I would have loved to have gone on it, but there was a big fine if you did step on it. I saw the managers seat, where he would sit watching his army of footballers try to win the game. There must have been hundreds of emotions going on in that seat when he was there. On the right side of the pitch there was massive cranes towering over us. That was because the stadium was getting more seats. Steve mentioned it would have about 65 thousand all in all i think. After 10 minutes it was time to leave because my Taxi driver Javid would be waiting. I would be doing work next time i go there.

About an hour ago, on the news it said Princess Anne was at the exact same stadium i had been too. And then i vaguely remembered Paul said something about that when i was there, but i was too anxious to think correctly at the time. And she was there at the same time. I bet we nearly bumped into her. That would have been a great story to tell. Imagine when i was stood at the edge of the pitch, a royal came and stood next to us. That would have been nerve racking and amazing.

Even though i don’t support the club it was a great experience to have.

Thanks for reading.

man city stadium

MY TREADMILL = EXERCISE FOR THE MIND

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As i said in my last post, i have recently acquired a treadmill. I saved up for a long time to get one. The model i have got is a Reebok zr10 (above). This machine retails at around £1,200 but i got it second hand at £450. And when i say second hand it pretty much isn’t, its like brand new. When me and Tim went round to check it out, the man said he and his wife had been on it maximum 15 times. Anyway before i have been going to college i have been going on the treadmill. I go on it for around 45 minutes all in all. This consist of me running 1 mile and then doing a program. There are around 24 programs all in all on my treadmill. A program is a preset work out. You can change the duration though before hand. As your doing a program the treadmill will automatically speed up or speed down, it also can put the gradient up to 15 degrees. That’s like going up a pretty steep hill. It is absolutely brilliant. And whilst your doing all of this the screen shows whats coming up next and you calories burnt, distance and speed. It also has an mp3 input, so i connect my ps vita and listen to whatever music takes my fancy, and its blasted through 2 speakers, which are actually pretty good. The max speed it can go is 11.2 miles per hour, though i haven’t attempted this speed yet. I have ran at 10 miles per hour but only for maybe 20 seconds. I actually want in future to be able to run a 5k race, so i am sort of training for it, even if it takes me 5 years. As i said before i run 1 mile at the moment. I have recently upped my speed from 5 mph to 6mph, so i am pleased with this. It takes exactly 10 minutes running at 6mph to run a mile. My record mile is 9.15 seconds. I did this the other day. After i had warmed up for a few minutes i started running at 8 mph. I ran this for 2 or 3 minutes when my chest really started to hurt. I know when im pushing myself but this was obviously too much for my body. So i slowed it down to walking for a few minutes and then ran at my usual 6 mph. I think when i go on my treadmill tomorrow i will up the distance. I will try to do 1.25 miles instead of my usual 1 mile. And then when i get good at doing that i will up the gradient slightly over time till its about 3 degrees. I think running at 2 degrees on a treadmill is about running normally outdoors. So that’s about it about my treadmill. I am really pleased with myself and with the machine.

I have a challenge for you all. Try to do a bit of exercise each day this week. It can be whatever you want, walking, cycling even dancing in front of the telly to music videos. Trust me exercise its a great thing. For me it keeps my mind less crowded (if i dont do any exercise i start to go downhill, like being depressed and i also have a self destroying mind which can only be dampened by exercise). I feel more confidant and of course your increasing the length of time you get on this earth. Once you get the fitness bug you will not go back. By the way my weight is now around 12 st 9 which is about 180 pounds.Thanks for reading

NEW TABLETS, PHYSCOLOGIST AND THE TREADMILL.

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Well that didn’t work out did it? i said i was going to write on here more often on here during my holidays but i didn’t. Part of it is because i might say in my head ” i will write on my blog tomorrow” and then tomorrow comes and something gets in the way. And this repeats itself for a few weeks. I have also had some rough times during the holidays. I think i might have been on the edge of another breakdown. Maybe, but maybe not because i understand myself a lot more now and because of that i am stronger.

About 3 weeks ago i bought a treadmill. I had saved up for it for a few months beforehand. I actually ordered one from a website that said it would be delivered within 5 days, then after i had ordered it it said on a email it would be about a month. So i cancelled it and began to look for a second hand one. I found one just up the road from us. It was 2 more models up than the one i had previously ordered and it was only £30 pounds more, so my mum rang up and arranged a time to go and look at it and get it. So i have one now. I have wanted one for about 5 years but could never afford and we never had room (we had a clear out the other week, we threw away the thing we didn’t need anymore). So i have been on the treadmill about 4 or 5 times a week since i bought it about 3 weeks ago. I will write another post sometime soon telling you in more detail what i do on the treadmill.

Around 5 weeks ago i went to the doctors with my step-dad. i went for a few things. One was to try to refer me to a psychologist and the other was about my heart. My heart kept being weird and hurting and beating differently than it should have been doing, so i am booked in for a ECG in a couple of weeks. My step-dad was a trooper at the docs. In England the docs try to save money wherever they can, so they will only do something if it is absolutely necessary, so my step-dad really had to persuade the doctor to let me access a psychologist. In the end after much persuading the doctor agreed, so around 3 or 4 weeks later i found myself going to the hospital to see the psychologist. My mum and brother Adam came and explained about my life. Things like what i get worked up about and things like that. she gave me some new melatonin and she gave me some pregbalin. She said in some cases it has been a life changer. By the way pregabalin is used for anxiety and epilepsy. So i am going seeing her again in just under 2 weeks to discuss how i have been on these tablets. So far i have felt no change but they could take a while to get into my system, or i may need a stronger dose.

So these are the main events in my school holidays (at least the ones i can talk about). Anyway as always thanks for reading.

KEEPING BUSY.

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For the past few days i have been keeping busy like i said. I have drawn 3 Pokemon so far. The first one was Butterfree, the second one was Bulbasaur and the third was Piplup. I have been enjoying drawing recently as it gives me something to do for half an hour whilst improving my drawing skills. I know the Pokemon i drew isn’t exactly difficult to draw but as there are over 700 to choose from you can pretty much choose your difficulty level. I have not managed to read but i will try to do that later (im reading Harry Potter and the chamber of secrets at the moment), but i have been getting up and going on my exercise bike for 5 kilometers before my shower. On Mondays, Tuesdays, Thursday and Fridays i have been also doing weights after the exercise bike. Things like dumbbells and pull downs on the pull up bar ( i am not strong enough yet to do many actual pull ups ). I have been still finding it hard to motivate myself, like for example i wanted to write this yesterday but i didn’t feel up to it so i am doing it today.  On the other hand i have been feeling slightly better in myself. But only slightly. Its still better than nothing though. I have been playing Skyrim on the ps3 in the day so that has kept my mind busy. Keeping my mind busy is one of the most important things i need to do in the holidays because if i become stagnant, that is when i will start to go downhill again, and i dont want that. Anyway here is my drawings:

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MY STUPID MIND.

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my stupid mind

i have not written on this for so long. I am sorry about that but remember in my last posts i said i am finding hard to motivate myself to write on here. Well i still am. I don’t know why i do this. It is just another thing my stupid mind does. I was getting a lot of support on my posts and i felt i was achieving something. So why does my mind do this to me? I really wish it didn’t. I am now on my big break from college. I have got nearly 8 weeks off i think. When i go back i will be doing some tests to see what level i am at. Then they will determine if i am ready to do my GCSE’s. Anyway as i have said i have got a lot of time off now. I am in two minds about this. On one hand im glad i can have a rest but on the other hand it is not in my routine. Also i get bored after anything more than 2 weeks off. I am going to be trying to do some constructive things whilst im off. Things like reading and drawing and hopefully writing on here. Anyway lately my mind has really been affecting me. i have been worrying about small things i wouldnt usually worry about. I have also been very depressed. I am useless. The only thing that i am good for is that i can love people more that most people (i think). That last statement is hard to explain but i can feel it in my body. My mind stops me from going anywhere too long because i cannot use other toilets apart from my home where i feel safe. This is my mind doing this on purpose so i cant do things that i love like climbing mountains with my brother. I would be able to do this by myself because there is no pressure from other people but i would be scared to go out by myself. I need to see a psychologist.  At this moment there is no point of me being on this earth. But i will carry on hoping for better things. I will try to get motivated to writing on here again because i do love it. Especially your comments and support. Thanks for reading.